It was a cold, but sunny day and the rain held off until things were winding down. Abby was thrilled to see all the people wearing her shirts and loved all the attention paid to her! It is her favourite day of the year, by far. She finished the entire 1 km with the support of her grandpa and dad. She fell asleep that night with a smile on her face.
Although the moral support for Abby and the other girls is the most exciting part of the Run4Rett, we also greatly appreciate all the financial support for the Ontario Rett Syndrome Association! For many people, it is tough to find sponsors year after year. Abby is blessed with an amazingly supportive network of family and friends who plead for pledges year after year on her behalf. This is much appreciated!
Rett syndrome is a life-long condition which affects the entire family. In addition to the daily need to accommodate for disabilities, we need to be constantly on alert for new medical complications. I am proud to say O.R.S.A. supports families in many ways while still supporting research to find an end to Rett syndrome. We're excited about the new Canadian Rett Syndrome Registry which will allow Abby to be part of clinical trials for treatments in the near future, thanks to our donors.
Thank you again and again for your support along the way!