Thursday, September 27, 2012

Let's Get Ready

It's rallying time for Team Abby and our supporters!
The Run4Rett is happening on Saturday, October 13th, 2012! 

Important Links:
You can also register on event day.  Just get there early to avoid the line-up.  The 1km walk/run is first and starts at 11:00 a.m.

Please make cheques payable to the "Ontario Rett Syndrome Association."  Tax receipts are issued for an online donation of $20 or more.  For cheque donations, it's $10 or more (because it doesn't go through Running Room.)

Our Team Abby shirts were just ordered!  This year's design is by Julia, Abby's 17-year old cousin. Thank you, Julia!  The shirts are blue with a white imprint.  Get yours on race day at the Team Abby table!

For anyone who would like to volunteer that day, please email me at so I can send your names in to the organizers.

We are grateful for all the work you do to collect donations to the Ontario Rett Syndrome Association.  We support this organization because we know the direct impact is has on Abby and many others with Rett syndrome in Canada.  O.R.S.A. relies on donations and membership for its entire budget.  There is no paid staff.  The bulk of the funding goes to research, conferences, medical clinics, and educational events and information for families and medical professionals.  This year, we'll see the start of the Canadian Rett Syndrome Registry, fully funded by O.R.S.A.  It is essential to establish this registry before clinical trials for treatment can start in Canada.

For those who can't come on October 13th, we still appreciate your support.  Donations can be mailed in or done online any time. Thank you!

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