Saturday, August 16, 2014

10th Annual Run4Rett

This year, we'll be celebrating 10 years of support for Team Abby and the Ontario Rett Syndrome Association! The 10th Annual Run4Rett is scheduled for Sunday, September 21st, 2014.

Here are the quick links:

Abby Update:

During the past several months, Abby has had several very bad days. She's also had a lot of very good days. We're still trying to figure out how to prevent the nervous system problems which can cause her a lot of pain and anxiety. Hopefully, her good days will start to prevail.

Abby continues to amaze us with her Tobii eye-gaze system. When she is unwell, she can tell us more specifically what's wrong. When she is feeling well, she is keen to learn more and present her research, tell us what she wants to do or what she thinks, entertain us with her music videos or tell us some jokes. She is also participating in a new research study on communication using eye-gaze technology. 

On September 2nd, Abby will be having orthopaedic surgery on her leg. It is similar to a surgery she had six years ago. The surgeon will be straightening her leg, just above her right foot. This will help her to continue to walk well. Lately, walking's been tough and Abby has become nervous about it. So, this year, Abby won't be running around the 1km route, but she'll be happy to have you come sign her cast! 

We are grateful to all those who donate or come out to participate in the Run4Rett! If you've never made the trip to Richmond Hill, please consider joining us! Team Abby has grown over the years to include friends of friends of friends and family. Thanks for helping to raise awareness and funds! Thanks for being a visible crowd of support for Abby and all the other girls and women with Rett syndrome.

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