Welcome to all you wonderful supporters of Abby, her family, and the Ontario Rett Syndrome Association. We decided to use this blog to post relevant updates about the Run4Rett, about Abby, and about what's new in the world of Rett Syndrome.
Whether you are a dedicated yearly participant or sponsor of the Run4Rett or you are just starting to wonder what this is all about, we are pleased that you've shown an interest! The annual Run4Rett in Ontario is the major fundraiser for the Ontario Rett Syndrome Association and your support and interest has and will help Abby and several other girls, women, and families who live with Rett Syndrome. Thank you!
Team Abby has been involved with the Run4Rett since 2005, when Abby's Aunt Judy dreamed up the idea. Since then, the team of extended family and friends has grown each year. Last year, we were seen sporting our spirit wear of bright orange shirts. Be sure to check out the photos and see how much fun we had!
Since last year's run, the money raised has gone to help many girls, including Abby. The Ontario Rett Syndrome Association joined the Neurological Health Charities Canada to help increase our advocacy potential and increase awareness with the government and the general public. The latest Rett Syndrome Clinic was opened at the Thames Valley Children's Centre in London and Abby had her first appointment there in June of this year. In addition, a $35,000 research grant has been awarded (recipient to be announced any day now). And we are looking forward to attending the biannual conference this September in Kingston. It is a valuable chance to learn the latest about research, support services, and medical management.
So, bookmark this page and stay tuned for all the updates.
As always, thanks for your support!